The healthcare journey of patients with adult congenital heart disease
14 January 2025
To understand the health care pathway that people born with a heart defect (congenital heart disease) access in adulthood (ACHD)
There are now more adults with congenital heart disease than there are children. It is important to understand the health care needs of this growing, older patient group.
This study aims to gain an understanding from patients about their health care journey and follow up care with cardiac services.
Requirements
- Adults over 18 years of age
- UK resident
- Confirmed diagnosis of congenital heart disease
Keywords
Ethical approval
This study has been approved by Liverpool John Moores University and the Health Research Authority November 2024
About the researcher
I am a 3rd year part time PhD candidate with the faculty of nursing at LJMU.
I am also a registered nurse and advanced practitioner working in community settings in the NHS as a research and effectiveness lead.
